Child Dementia sewobe 16. May 2024

Child Dementia

Imagine being part of something big, a light in the darkness for families fighting an invisible but devastating disease: childhood dementia, also known as Neuronal Ceroid Lipofuscinosis (NCL). This insidious disease robs children of their vision, mental clarity, mobility, and ultimately their lives. The NCL Foundation is on the frontline of this battle, but this fight cannot be won alone.

Here’s where you come in. There are countless ways you can help and be part of the solution:

  • Educate yourself and spread knowledge:

Awareness is the first step in the fight against NCL. Visit the NCL Foundation website to learn more and share this knowledge with friends, family, and on social networks.

  • Volunteer:

Your time and skills are precious. Whether you help organize events, spread information, or support the foundation in its daily work – your help makes a difference.

  • Support with a donation:

Every donation, large or small, helps finance vital research projects. You can donate directly to the NCL Foundation’s account or simply donate online. Every contribution counts and brings us closer to hope for treatment and cure.

  • Participate in events:

The NCL Foundation regularly organizes events to raise funds and raise awareness about NCL. Whether it’s running events, art auctions, or informational events – find an action that suits you and join in.

  • Be a social ambassador:

Use the power of social media to generate attention. Follow the NCL Foundation on platforms like Facebook or Instagram, share their posts, and continue the stories of those affected. Your voice can reach far.


Everyone can help, and every contribution brings us closer to the goal of creating a future without childhood dementia. Families living with this disease endure an incredibly difficult time – but together, we can offer them hope and support.

It’s time to act. We would be delighted to connect you with Dr. Frank Stehr from the NCL Foundation. Your commitment, in whatever form, is valuable and urgently needed. Let’s together illuminate the darkness and take on the fight against childhood dementia. Your efforts count – join us!